Seek
out a knowledgeable physician to determine the origin and cause of
your pain.
KIDNEY CYSTS
KIDNEY STONES
SURGERY PAIN
LIVER CYST PAIN
BACK - JOINT PAIN
TOOTH PAIN
HEADACHE
CHRONIC PAIN
CHEST PAIN
KIDNEY CYSTS This
pain can become chronic requiring narcotics. For a review of some causes
of PKD pain click
here. The source for kidney pain can include but is not limited
to the following:
kidney stone |
infection |
bleeding into a kidney
cyst |
Gout - joint pain from high uric
acid |
kidney cyst rupture |
infection within the bladder |
infection within the kidney |
infection within the kidney cyst |
inflammation of the kidney |
KIDNEY STONE
Your doctor can determine if you have a kidney stone an ultrasound
study or CT scan. He might ask that you strain your urine through a filter
to catch any possible gravel. This will give a clue as to what type of kidney
stone you are forming. This knowledge can aide in the prevention of future
stone formation. Shohl's solution or
potassium citrate is an old time remedy for kidney stones. Pain relief will
need to be given immediately, usually in the form of narcotics. If your urine
is too acid you will need to maintain a constant alkaline pH,
increase water intake, and eliminate too many proteins. Urocit K and polycitra
syrup are two forms of potassium citrate a strong alkalizer. These
medications are useful for preventing future kidney stones. A high salt diet
increases the amount of calcium excreted in the urine. This too promotes
the formation of calcium stones. Avoid caffeine. Two
(2) separate studies found caffeine and protein to be a primary factor in
the chances of developing more kidney stones. If you have an oxalate stone,
your doctor may suggest you avoid high oxalate foods such as spinach, rhubarb,
beets, strawberries, wheat bran, nuts and nut butters. Here is an oxalate
food list and another oxalate
food list. Naturopathically it is recommended
that one, alternate freshly squeezed apple juice with freshly squeezed
lemon juice each hour.
KIDNEY STONE
ARTICLES
Nephrolithiasis treatment
improved with magnesium and potassium citrate
Nephrolithiasis trial
with potassium citrate
Potassium Citrate kidney
stone trial
Potassium Citrate polycitra
- K prescribing information
Potassium Citrate bio
of G. Tanner and publications
Potassium Citrate Urocit
dose chemical structure
Potassium Citrate Urocit
contraindications
Potassium Citrate Reoccurrence
of kidney stone diminished by potassium citrate
Caffeine causes
an increase in kidney stone formation
Low Oxalate Diet
A study from Italy was done to determine the
correct diet for chronic kidney stone formers. Participants wanted
to prevent future kidney stones. Each participant drank 3 liters of
water daily. Their daily protein intake was determined by laboratory
testing. The hypothesis was would dietary calcium cause an increase
in kidney stone formation? It was determined that dietary calcium was
not the culprit. It was eating too much protein. It was thought that
dietary calcium might precipitate kidney stone formation. Participants
used the same guidelines. Participants gladly cut back on their protein
intake to assure no further kidney stones.
SURGERY PAIN For
post surgical pain relief, An indwelling epidural catheter is sometimes
left in place for 3 days following surgery. This results in a totally numb
feeling from the lower abdomen to the tops of the thighs. Sometimes narcotic
pain medication can bring on extreme nausea.
LIVER CYST PAIN About
8% of individuals with cystic livers go on to develop severe polycystic
liver disease. Pain is the most common symptom from polycystic liver
disease PLD. According to a polycystic liver
disease PLD review from Alberta Canada 1990 - 2002
36.6% experienced
pain
9.6% had difficulty breathing
9.6% restricted mobility
45% restricted mobility with hepatomegaly
62.3% female
37.7% male
71.7% had PKD
The
mean age at diagnosis 56.4 years We are a very stoic group of
individuals and often wait until there is a low level of chronic
pain before seeking help. Should the pain become chronic requiring
opiods, fentanyl patches, vicodin, oxycodone compounds to allow us to function
on a daily basis, there is a procedure available called a Splanchnic denervation of T10 -T12. This is done laparoscopically, performed
by a thoracic surgeon and available at many centers throughout the world.
Some individuals have been helped by this procedure.
Here is a short listing of various reasons for experiencing liver pain:
infected liver cyst |
back pain |
bleeding into a cyst |
bloating and distension |
burst liver cyst rupture |
liver toxin exposure |
increase in secretin |
biliary duct blockage |
gallstone |
rib pain • between rib pain |
bone and joint pain |
PNE pudendal nerve entrapment |
bile duct blockage |
foods |
swelling feet and leg pain |
expanding liver capsule pain |
exposure estrogen |
caffeine chocolate coffee tea |
exposure pesticides bleach |
exposure cleaning chemicals |
exposure ammonia |
exposure to alcohol even sprays |
exposure xenoestrogens |
exposure false estrogens |
exposure to estrogen disruptors |
exposure to phytoestrogens |
exposure chemical sprays |
exposure to dusting chemicals |
BURST CYST If there has been a rupture of a liver
cyst, there are specific imaging studies to determine this. A burst cyst
requires rest to enable the body to fully heal.
CYST INFECTION If it is determined that
there is an infection within a liver cyst, these are very difficult to
diagnose and treat. An infected cyst can be very unresponsive to antibiotics.
It is difficult to penetrate the liver cyst walls with antibiotics and
treatment usually has to be repeated every 6 weeks with multiple sessions.
Tagged white blood cells along with imaging, are used to determine which
liver cyst is infected. Once the infected cyst is isolated, sometimes
antibiotic is directly delivered to this target cyst.
LIVER TOXINS If the cause of liver pain has been to an exposure
to a liver toxin such as bleach, try a heating pad, hot
lemon juice , saffron
tea, saffron thistles, milk thistle
plus (milk
thistle,
artichoke and turmeric capsules) and
cabbage juice. This
usually gets the pain to subside. Careful with cabbage juice and any
cruciform vegetables such as broccoli, rutabagas, cabbage, brussel sprouts,
cauliflower if you have difficulties with your thyroid.
FOOD If it is something I have eaten that
is causing bloating and distension, I avoid yeast, wheat, sugars, alcohols,
and more until I can isolate the offending food and then I avoid it.
I take lemon juice with hot water with tupelo honey until the pain subsides.
I eat small amounts of food or I stop with all food and just sip lemon
water for an afternoon. Caffeine,
chocolate, fine French wine, soy, wheat, yeasted products, cheese, ale,
beer, sugar, pastry, baked goods, fish oil, salmon, and flaxseed have
all caused my liver to severely ache. Proteins especially animal proteins
cause an increase of secretin.This adds to the expansion of liver cysts
and to the growing discomfort.
To read more try: Liver avoids, liver
diet, liver lecture, liver
treatment, liver
hormones, liver nexium,
liver hot flashes, liver black
cohosh, a story of an individual with
liver cysts, our stories, liver and false
estrogen,
liver and phthalates in
cosmetics-shampoo- creams, and liver transplant.
GALLSTONES Sometimes we can develop gallstones. Oftentimes the pain of
PLD overlaps and mimics gallbladder pain. The pains from a cystic liver
can intensify and be mistaken for gallbladder pain. If a doctor should
recommend gallbladder surgery for you, get a second opinion or see if
you might be a candidate for a liver
resection, a
liver transplant or a TAE. The gallbladder is removed with both a liver
transplant and a liver resection. These procedures can be curative
for PLD. To read more about liver treatment, click
here.
According to the following articles laparoscopic liver
deroofing requires repeated surgeries and ultimately either a liver resection
or liver transplant to reduce the mass effect of extensive cystic liver disease.
LIVER
CYST PAIN Is
there anything to do to ease the pain when my liver hurts? It is not
a burst cyst; it just hurts especially when I take a deep breath or
cough or sneeze.
Pain is the most reported symptom from liver cysts. Pain
when you take a deep breath can be from one or several liver cysts near
your diaphragm expanding and filling with fluid. To ease these pains I
usually try:
1. Lemon juice recipe
2. Saffron tea recipe
3. Heating pad
4. Milk Thistle Plus (milk thistle, turmeric,
artichoke)
5. Organic Turmeric capsules
6. Avoid sweets, yeast, sugar, alcohol, chemicals,
bleach
Is there a pain center for cystic organ pain?
Yes there are several PKD centers throughout the USA. One is at
the Cleveland Clinic. Another is at the Mayo Clinic in Rochester Minnesota. I
mention liver cysts alongside kidney cysts as most, if not all the research
for polycystic liver disease has come through polycystic kidney disease
centers. The ARPKD animal models are similar for testing treatments for
Polycystic Liver Disease.
Why are aspirin, NSAIDs, phenacetin,
tylenol and other over the counter pain medicine harmful?
Individuals with cystic organs should
avoid these if possible. These can cause kidneys to fail even in people
without kidney disease. It is the long term continuous use of these products
which causes kidney problems. The rare use of these medications for a limited
time is probably all right under your doctor's advice. The latest FDA warning
is for all individuals to limit simultaneously taking full strength aspirin
in conjunction with ibuprofen.
Patients who are using ibuprofen for pain relief should do so at least
30 minutes after immediate-release aspirin taken for cardioprotective or
stroke-protection or at least eight hours before taking immediate-release
aspirin. Ibuprofen taken this way, the FDA said, does not appear to interfere
with aspirin's antiplatelet effect. We with PKD should not take either
of this OTC over the counter medications as the harmful effect upon both
kidneys and liver is over a lifetime.
Are there any other things which might help with
pain?
Pineapple is a strong anti-inflammatory. When I slipped
in the ice one frosty winter I began with pineapple juice, then pineapple
smoothies, frozen pineapple sorbet, and by morning the pain had disappeared.
Lemon juice diluted in warm water gives me relief from headaches, from
muscle aches, from kidney pain and liver pain. When I have drunk any citrus,
I will wait twenty minutes before having something else, otherwise I get
a bit of indigestion. Each morning I juice two lemons. For my husband I
give him the juice of half a lemon mixed with one teaspoon of tupelo honey
diluted in a cup of water. Stir with a small wire whip. He loves this.
Papaya is high in papain, which helps dissolve proteins, high in natural
anti-inflammatories which helps to relieve low back pain. Apple juice alternating
with lemon juice is said to help with the pain of passing kidney stones.
It is very alkalizing. Saffron tea one teaspoon in a cup of water allow
it to reduce down to 1/2 cup has really helped me with liver pain.Milk
thistle (silymarin) is a good herb for liver pain.
Cabbage juice with almonds
stimulates endorphins of the brain and causes a release of natural morphine
to help with pain. It also returns gray hair to its natural color and prevents
future graying hair. Heating pad. I lay or sit with heating pad over the
area sipping my lemon tea. I have the type of heating that gets hotter
and hotter as long as you continually hold the button. It gives off a moist
heat. Wonderful for relieving pain of aching kidneys, liver or muscles. Email with
any questions. Discuss the above suggestions with your physician:
If the pain does not lessen with two lemons juiced three times a
day, then try saffron tea, lie down with a heating pad (Try a moist
heat pad known as a theromopore - while you continue to depress
the button it gets hotter and hotter. Once you let go of the button
it cools down). If after trying these and the pain is still there,
try milk thistle plus - 2 capsules three times a day and start
with organic turmeric capsules as well. Now is the time for the
detective to come out and to discover what foods or chemicals may
have triggered
these pains as well as exposure to estrogen and false estrogen.
Avoiding yeast, breads and baked goods along with concentrated
sugars, soy, will help alleviate bloating. These foods can turn
into alcohols when ingested and cause an increase in bloating and
pain from liver cysts. For a more complete list of things useful
and those to avoid try here.
ARTICLES LIVER CYST PAIN
Deroofing UK liver cyst
experience.
Laparoscopic
deroofing Colorado symptomatic relief liver cysts
was undertaken in eight patients, with one conversion to open technique
because of bleeding from a superficial hepatic vein.
Laparoscopic
deroofing Hungary 2006 Laparoscopic
deroofing was indicated when a single liver cyst
was larger than 5 cm (the general size of liver cysts
was 6.9 cm) and caused complaints of pain and was in
a superficial position.
Laparoscopic
deroofing Mexico 2004 laparoscopic deroofing is reserved
for type I polycystic liver disease.
There are no prospective randomized studies that show benefits
of laparoscopic over open surgery.
Laparoscopic
deroofing Greece 2005 Despite the reported morbidity, aggressive
and meticulous deroofing of type II polycystic liver disease
is possible.
Laparoscopic
deroofing Poland 2001 Fenestration (deroofing) with excision
of the liver cyst wall is increasing.
Open
deroofing Poland 2001 Open surgery is safe and effective for
symptomatic liver cyst and complication
rate is low. Deroofing 2000
Albert Einstein Med Ctr USA For simple liver cysts,
percutaneous aspiration invariably leads to recurrence; laparoscopic
deroofing is usually curative.
Deroofing Edinburg
Scotland 1998 no symptomatic recurrences after 14 hepatic resections liver
cysts.
Liver Treatments
Liver Transplant
Liver Resection
Liver Laparoscopic Procedures
Liver TAE
JOINT PAIN BACK
PAIN
Sometimes our cystic organs become enlarged. that it is like caring around
40 pound sack of rice or potatoes. This creates a strain on the back, the
rib bones, the hips and more. For this some have tried the services of
a chiropractor. If you can find one that uses the strain counter strain
technique, this is very good. A few have been taught a series of exercise
so this can be prevented. .For back pain most of us do not take aspirin,
tylenol, NSAIDs, ibuprofen or other over the counter non-steroidal anti-inflammatories.
Some have found cherries, papaya, and pineapple helpful - all strong anti
inflammatories. Bromelain is the pill form made from pineapple and papaya
(contains papain).
JOINT PAIN -
GREAT TOE PAIN
Individuals with PKD have elevations of body acids,
especially urinary uric acid. PLD 'rs often have elevated uric
acid levels from the liver's inability to metabolize body acids. This
sometimes manifests as gouty arthritis, or pain in the great toe. The
pain is from uric acid crystals trapped within the joint. Sometimes I
get great toe pain. I have found that by avoiding raw spinach (high in
oxalates) and the nightshade plants (tomatoes, potatoes, eggplant, peppers,
tobacco and belladonna) these joints do not ache. If the toe does act
up, I take foods which help to lower uric acid, i.e. ten cherries a day,
nettles, artichokes, a shot of wheat grass juice, or I chew on a few
sprigs of parsley. Nettle juice lowers uric acid, is a great alkalizer,
however it is also high in potassium. A few drops of non alcoholic nettle
extract in a cup of warm water seem to help relieve great toe aches.
Cherries, ten a day, helps with arthritis pain by lowering uric acid.
A rheumatologist told me, he investigated all the different foods that
seemed to help arthritis and the one that was really helpful were cherries.
Attempting to maintain a constant relative
alkalinity helps to diminish body pains from cystic organ disease. This
can be accomplished through diet and lifestyle and by supplementing occasionally
with potent alkalizers such as potassium citrate or sodium citrate. Citrate
alkalizers are preferable to KCL (potassium chloride) or sodium bicarbonate.
See the page on Potassium
Citrate for
more information.
JOINT PAIN -
ARTHRITIS
I drink the juice of two freshly squeezed lemons each
morning and I have the juice from about a two inch wedge of a cabbage juiced
with 5 almonds. If this does not relieve the pain, then I start with 10
cherries (I must confess I have sometimes eaten maraschino cherries
if I cannot get frozen or fresh) and this did make the joint pain go away
but by morning, I had a migraine headache from the sugars and dye in the
maraschino cherries. If I am traveling, I might stop in a jamba juice bar
and get a one ounce shot of wheat grass followed by a bite into an orange
slice.
TOOTH PAIN Plain
darvon or propoxyphene for pain relief after a tooth extraction and a
root canal might be preferable to tylenol or Ibuprofen or aspirin or
NSAIDs. If one can tolerate plain codeine this too can be helpful but
constipating.
TYLENOL ARTICLES Paracetamol (acetaminophen)
acetaminophen-induced liver
toxicity in rats
kidney
function in elderly
Combination analgesic-induced
kidney disease: the Australian experience.
HEADACHE If
you have a history of aneurysms in your family, and you experience the
worst headache you have ever had, call your doctor and get an MRI of
the brain to determine if you might have an aneurysm. See imaging for
more information. Prior to surgery, this was a part of my surgical workup.
I have a family history of aneurysms.
This is not the usual headache, however. The usual headaches I get occur
when I have eaten chocolate. This triggers a migraine and it occurs not immediately
but 3 - 4 days later and it is usually a whooper of a headache. Once I sense
this headache coming on, I start right away drinking freshly squeezed lemon
juice until the headache abates. Imitrex, a medication to relieve migraines,
decreases the blood flow to the kidneys and is to be avoided with PKD.
CHRONIC CYSTIC PAIN -
CLINICAL TRIALS
Dr. Marie Hogan at the Mayo Clinic in Rochester Minnesota
USA is conducting a clinical trial titled ADPKD Pain Study. This utilizes
an interventional procedure known as - Videothracoscopic Splanchnicectomy
(VSPL) similar to Videothoracoscopic
splanchnicectomy done for pancreatitis pain.
Status: Currently Recruiting - Enrollment goal: 20
Description: To evaluate the effectiveness of VSLP procedure for pain management
in patients with ADPKD
Contact: Beth B. Bjornson at 507-255-7768 or bjornson.beth@mayo.edu
Splanchnic Diagram
of Nerves
KIDNEY CYST
DEROOFING for
pain relief.is another surgical procedure done for pain relief. There
are a handful of surgeons throughout the USA who perform DEROOFING laparoscopic
surgery of polycystic kidney cysts and polycystic liver cysts. There are dedicated
operating suites for this. Deroofing is solely for pain relief. It does not make
kidney functioning worse nor does it make it better. It does not affect liver
functioning. Of those that are helped with their pain, almost all eventually
have to repeat the procedure. One individual noted that her liver cysts came
back with a vengeance. She experienced no pain relief. The amount of pain has
nothing to do with cyst size or numbers of cysts. Decompressing the cyst and
relieving the pressure on other organs does not always stop the pain. The response
is very unique with each individual. Dr.
J F Valente uses laparoscopic denervation of the kidney to relive chronic
pain. He also has techniques to de-roof cysts for pain relief done laparoscopically. Dr
Valente is at the Cleveland Clinic. Sometimes laparoscopic surgery is used
to remove cystic kidneys provided their size is small enough to allow this. Another
laparoscopic surgeon is Dr.
Ralph Clayman at University of Irvine California. Commonly
the native kidneys are left in place. Surgeons may wait 6 months before removing
the native cystic kidneys. Natives are not always removed. They are removed for
uncontrolled high blood pressure, chronic infections, and shear mass of the cystic
organs. See dialysis and transplant for
more information.
CHEST PAIN -
HEART ATTACK WARNING SIGNS Some
heart attacks are sudden and intense — the "movie heart
attack," where no one doubts what's happening. But most heart
attacks start slowly, with mild pain or discomfort. Often people affected
aren't sure what's wrong and wait too long before getting help. Here
are signs that can mean a heart attack is happening: Chest discomfort.
Most heart attacks involve discomfort in the center of the chest that
lasts more than a few minutes, or that goes away and comes back. It
can feel like uncomfortable pressure, squeezing, fullness or pain.
Discomfort in other areas of the upper body. Symptoms can include pain or discomfort
in one or both arms, the back, neck, jaw or stomach.
Shortness of breath. May occur with or without chest discomfort.
Other signs: These may include breaking out in a cold sweat, nausea or lightheadedness
As with men, women's most common heart attack symptom is chest pain or discomfort.
But women are somewhat more likely than men to experience some of the other common
symptoms, particularly shortness of breath, nausea/vomiting, and back or jaw
pain.If you have chest discomfort, especially with one or more of the other signs,
don't wait longer than a few minutes (no more than 5) before calling for help.
Take an aspirin right away and Call 9-1-1... Get to a hospital right away. Heart
Attack Warning Signs
CHEST PAIN -
STROKE WARNING SIGNS
Sudden numbness or weakness of the
face, arm or leg, especially on one side of the body
Sudden confusion, trouble speaking or understanding
Sudden trouble seeing in one or both eyes
Sudden trouble walking, dizziness, loss of balance or coordination
Sudden, severe headache with no known cause.
If you or someone with you
has one or more of these signs, don't delay! Immediately call 9-1-1 or
the emergency medical services (EMS) number so an ambulance (ideally with
advanced life support) can be sent for you. Also, check the time so you'll
know when the first symptoms appeared. It's very important to take immediate
action. If given within three hours of the start of symptoms, a clot-busting
drug can reduce long-term disability for the most common type of stroke.
A FEW PAIN RELIEF ARTICLES
Deroofing 2003
UCI California. Cyst decortication of 29 polycystic kidney patients
One patient had greater than 20% increase in creatinine clearance; six
patients had worsening hypertension. Every detectable cyst within 2 mm
of the renal surface was treated. About half of the patients noted a 50%
decrease in their pain.
Laparoscopic renal
denervation for intractable ADPKD-related pain John
F. Valente
Chronic pain may require opiods or fentanyl
patch or vicodin just to enable us to perform the activities
of daily living. There are two (2) surgical procedures
to help us with chronic pain from cystic organs - PKD and
PLD. Both are done laparoscopically.
Renal nerve denervation first
done by John F. Valente MD now in Cleveland Ohio. Renal
denervation is performed by laparoscopic surgeon, probably
a transplant surgeon or a urologist.
Splanchnic
denervation of T10 - T12 for intractable abdominal
(PKD) pain. This is performed by a Cardio-Thoracic laparoscopic
surgeon. It has been performed in South
Africa, the UK, Germany and the USA.
Pain
Laparoscopic fenestration R Clayman MD - 29 ADPKD patients with
debilitating pain, underwent 35 extensive laparoscopic cyst decortication
procedures. The
average follow up was 32 months. Half of the patients at 2 years noted
50% improvement in pain. Renal function remained largely unchanged
over the 3-year follow-up period with one patient had greater than
20% decrease in creatinine clearance.
Pain Laparoscopic
denervation by John F Valente MD
Pain Laparoscopic
denervation by Chang
Pain Management
Torres MD
Pain GAIT study
osteoarthritis knee pain
Pain Chondroitin
GAIT study knee pain
Splanchnic
denervation of T10 -T12
Splanchnic
denervation India
Splanchnic pain
South Africa
Splanchnic pain
UK
Pain deroofing Sultan
Qaboos University
Pain Laparoscopic
nephrectomy 35 pages
Pain China laparoscopic
fenestration cysts
Pain Cyst aspiration fenestration
recur 75%
Pain Ethanol
Hepatic Cysts alt Liver Tx
Pain TYLENOL ARTICLES Paracetamol (acetaminophen)
Pain
acetaminophen-induced liver toxicity in rats
Pain tylenol on kidney
function in elderly
Pain Combination analgesic-induced
kidney disease: the Australian experience
Pain treatment with both liver
and kidney disease
Pain Gabapentin
in patients with the pruritus
last updated
Wednesday, December 17, 2008 12:22 PM
|